I feel like this is going to be a bit of an inflammatory post, I really do, especially within the spoonie community, or whatever it is we are calling ourselves these days. Are we warriors, spoonies, or munchkins? I don’t know. What I do know is that there are things some chronically ill people need to learn. I find a lot of the community to be incredibly negative and it personally puts me off.
1. You are not your illness.
You were a person before you got ill and you are still a person. Whatever your illness is, it doesn’t define you. If you were Andrea with the multi-coloured hair before you got ill, as long as dying your hair doesn’t make you worse – I know with some illnesses you become really sensitive to things so don’t make yourself ill to prove a point – you can still be Andrea with the multi-coloured hair. I’m still the same person I was before the diagnosis. I just move a little slower and rattle a little more than I did.
